Nebula Genomics announced that it will partner with Oasis Labs to bring a new standard for responsible data use in the personal genomics industry and provide consumers with first-of-its-kind control of their genetic data.
From massive data breaches to sales of private data, users and companies are more concerned than ever with keeping personal health information private and secure. For example, nearly 80% of respondents in a recent Pew Research study noted concern of how businesses were using consumer data. Sensitive information can take the form of electronic medical records, and more recently, personal genomic data.
“Today, it’s incredibly difficult for users to own and control their data in a private and secure way. Consumers need new solutions that provide the benefits of using data at scale without the risk that their data may be taken out of their control,” said Dawn Song, CEO and Founder of Oasis Labs.
“That’s why we’re so excited to work with Nebula. We’re excited to further Nebula’s mission to enable customers to maintain the privacy, ownership, and control of their personal genomic data.”
While direct-to-consumer genetic testing companies have opened up an entirely new world of information on ancestry and disease risk for individuals, many have come under fire for violating user privacy and breaching user trust.
Many incidents have been reported over the past years. For example, one genealogy company was affected by a security breach that compromised personal information of tens of millions of users and another DNA testing company became subject of an investigation by the Federal Trade Commission over its policy for sharing genetic data.
“Those issues have ra ..